Clapper, Patti, Schweizer and Mason

This is the final of our four part series describing what its like to have mesothelioma from the mesothelioma patient’s perspective.   This last article briefly discusses the psychosocial issues that come with being diagnosed with mesothelioma.

 

Patients who are diagnosed with mesothelioma are in quite a unique position. Unlike other cancers, mesothelioma is incurable, has little effective treatments, and symptoms can be painful and recurring.    Because of this, many patients feel depressed, anxious, and overwhelmed and take on fatalistic, yet stoic attitudes.

 

Facing the diagnosis and going through treatments for mesothelioma is incredibly stressful physically, mentally and emotionally. Most patients will oscillate between acceptance and denial as well as hope and despair throughout the course of having the disease. All patients seem to keep the main focus on coping with the disease, treatments and side effects as well as possible, and the essential support of loved ones, especially spouses.

 

Although all fully accepted their diagnosis, and that there is no known cure for mesothelioma, most hoped for the best outcome of extended life with good quality – the ability to celebrate wedding anniversaries, participate in favorite activities, etc. for as long as possible.

 

Emotional distress was highest at the time of being given the diagnosis and also when the symptoms of mesothelioma became painful, scary and prevented simple daily functioning. The burden of all of this left many exhausted at times.

 

In addition to dealing with the disease, almost all patients seek assistance from a mesothelioma law firm to help get financial compensation for covering some of the costs of treatment and loss of ability to contribute to the family. At times, the symptoms of mesothelioma become so great that it makes it more difficult to pursue the legal process, despite the great need to do so. Again, this is where family support was crucial.

 

Overall, patients experience the full spectrum of psychological, physical, and emotional challenges, and yet almost all take on a determined attitude to make the best of what time they have left and accept their diagnosis of mesothelioma with courage. 

 

Any and all kinds of support, whether from family, friends, trusted doctors and nurses, or cancer groups were reported as being the most helpful in relieving stress, strengthening hope and providing comfort. If you have been diagnosed with mesothelioma, consider reaching out in some way to others with the same diagnosis. If you know someone diagnosed with mesothelioma, do what you can to provide love, humor, and comfort while taking care of yourself as well.